I am excited to announce that another Guest Inspiration has come forward to share her testimony with us. Ms. Subhana Wrights is a warrior who is surviving, serving & slaying daily with a condition that causes her immune system to attack her own body. She is a shield-maiden that takes her condition, Psoriatic Arthritis, head on while still LIVING! Her condition can leave her susceptible to skin lesions, unwanted stares & comments, joint pain, stiffness. swelling, etc. on a regular basis. Although there is no cure for her condition, she has not allowed herself to be defined by it. In fact, she has done the exact opposite. She has defined what it is to LIVE, SURVIVE & CONQUER despite what challenges may discourage her. She understands the weight of her testimony & has chosen to use this platform to share with others. Please read & share this young woman’s testimony & recognize her for her courageousness. Subhana, You ROCK (allat) girl, thank you simply for being you!
“If you were looking to be accepted from the world and everyone in it, after what you’ve been through, then you were sadly mistaken & the sooner you come to terms with that, the better”-Subhana Wrights
Deciding what to wear or what not to wear, which scares to hide and which scares to show. Finally, I got it! I’ll wear this orange off the shoulder dress. It’s not too revealing but revealing enough and I still feel sexy. I get dressed, lay down my edges, put my faux locks in a high bun and head to my best friends hotel. Ding Dong! I’m outside, ready to have a good time. As I walk in “wow you’ve lost so much weight, are you ok? What are those scars on your body?” Yes I’m ok and I’m stronger than ever. These scars are just symbols of the journey I’ve been through and the strength I have to overcome. These are questions I wasn’t prepared to answer, this was the first time I put on a revealing dress since I’ve been diagnosed.
In October 2017, my body was 80% covered in black and brown lesions from head to toe. My scalp was covered in dandruff which causes build up. For example, if I were to wash my hair, within 6 hours my scalp would be covered in flakes and the itching caused hair loss. Going from having a head full of hair, acne free skin and a blemish free body sent me in a mental spiral. The lesions on my body itched 24/7 and burned at night when I tried to get comfortable enough to sleep. My ankles had become so swollen it hurt at night to walk or to even stand for a long period of time. All in all while going to work day in and day out. A lot of people saw the lesions on my face and thought then said, “OMG! What happened?”, “Did you use a different soap?” All questions I wasn’t able to answer because I didn’t have a diagnosis yet to what was wrong.
In November 2017, I was finally diagnosed with psoriasis/psoriatic arthritis. I finally had an answer but the journey to recovery was like no other. By the time I was diagnosed I already lost 50lbs and my hair was so thin and brittle with two bald spots due to itching and build up. I was told I still had to wait for treatment to see if my health insurance would approve it. Two weeks later I was notified that my insurance was not approving the treatment due to it being too expensive. One injection alone cost 13,000 dollars which was only a piece of the treatment needed to begin my recovery. Soon after, I was notified of the possibility to be eligible for free treatment through a medication program but I would have to apply first.
During the waiting time my condition worsened and depression started to settle in. My ankles and joints became so swollen that the skin around it felt tighter and tighter every step I took. My liver became enlarged which is a common factor patients with psoriasis. Getting out of bed everyday was a struggle for me. I was contemplating the purpose of living with this condition and if I was going to be limited. In my mind this condition was the worst thing that could happen and since it was passed on through genetics, why not kill myself to prevent it from being passed on to future generations. This was my silver lining, suicide and ending it all. I went from being a lifelong athlete to being frozen in life. Everything stood still. Each day went by slower and slower. Every day I woke up waiting for a phone call with an answer and every day I didn’t get it drew me closer to ending it. My outlets in life were always going to the gym or playing sports but when my outlets caused more pain than relief I had to let it go too.
In the process of letting go I had to find something to hold on to, to keep me present. I began to dig deep, past my thoughts and my depression. I had to go beyond myself to save myself. While being frustrated about the problems with my chronic condition and the lack of answers; I began to create hope not only for myself for the others suffering in silence too. I decided I can’t be the only person going through this pain, although it’s not a common condition there are other people out there who share the same pain as I do. This is when I decided to fight. The biggest battle I’ve had to conquer yet, the battle of myself.
Every day I woke up I verbally told myself to get up and fight. One step at a time, sit up, stand up, brush your teeth, and take deep breaths then fight. I decided to put my mind to use on something positive to keep my mind occupied to fight depression. I created a charity called ”Bhana’s Purple Meals on Wheels”. The Purple Heart represents Auto Immune Disease Awareness. The meals provided were home made by me and were sold for no more than $10.00. Proceeds went to research for people suffering from Auto Immune Diseases. I decided to be the voice I couldn’t find, I decided to shine the light I never had, I decided to fight.
Also, while in the process of letting go, I drew closer to my passion for writing which brings me into sharing a piece I wrote while in this journey but first, here’s what writing means to me. Writing is like painting to me. I can’t paint with a literal paint brush but with my words I can create the reality of which I wish to paint only using words. Every word is a stroke, every placement of my words is an accent. Every statement is a stamp. A stamp with the pigments of my imagination attached. Pieces of my mind painted with words that flow as times goes. The more time moves forward the more pieces of the past I paint using my words of color bringing life to my thoughts, experiences, hopes & prayers and words of wisdom. I hope you enjoy and know that you’re all stronger than you think.
If you have any questions or would like to share your thoughts, feel free to email me at : firstname.lastname@example.org
The Process of Being Submerged
The process of being submerged
To reemerge taller, stronger, wiser
Having the darkest of days
Trying to find my way
Questioning my way
Thoughts of ending my way
Forced to choose crush or be crushed
Finding the voice
Emerging the voice
Making a choice
A choice to end the battle with me
A choice to carry this battle with the voice I have seen no one have
The strength to carry mountains
Mountains of silence by the millions carrying this
This voices of those who are currently silent, I choose to carry it
I choose to bring life and strength, and light to darkness
I choose to fight with the power of millions silently behind me
See, through this all I’ve realized none of it is about me at all. I was the strength that was chosen to carry this with my natural fighting spirit
I was chosen to fight, punch, and kick, with the power of them behind me
I’ve always questioned my purpose and why I am the way I am before all of this began and now, now it’s all so clear
I’m here to fight